The MDA Engage seminar in Hershey, Pennsylvania, brought together neuromuscular families and specialists for education and ...
Able,” a short film starring my girlfriend, Amanda, and me, was selected for inclusion in AN/OTHER Film Festival in Fremantle ...
The FDA is considering whether to conditionally approve a new treatment for DMD patients with mutations amenable to exon 51 ...
Columnist Betty Vertin shares big news about a bigger house her family is buying that will better accommodate her sons with Duchenne MD.
CureDuchenne has launched a national public service announcement campaign to highlight the urgent need for new treatments for ...
Commendamide, a metabolite produced by beneficial gut bacteria that are depleted in people with DMD, protects muscle cells ...
After two difficult years, columnist Betty's Vertin's son Max won't go back to college this fall, a decision that has her breathing easier.
We are pleased to partner with the Muscular Dystrophy Association (MDA) to bring you coverage from the MDA Engage Symposium.
As a Duchenne muscular dystrophy survivor, I’ve spent much of my life on the outside looking in, especially when it comes to public events like concerts and sporting events. My condition affects not ...
People with Duchenne muscular dystrophy (DMD) require some level of caregiving throughout their whole lives, particularly as the disease progresses and patients become less mobile and more reliant on ...
Muscular dystrophy (MD) refers to a group of inherited muscle disorders caused by mutations in genes that generate proteins that play an essential role in muscle structure and function. The disease ...
My dear friend Colin Rensch had a saying: “If you think you can, then of course you can.” I met Colin because I live with limb-girdle muscular dystrophy, and he lived with Duchenne muscular dystrophy.