Madilynn on Instagram: "Learning to walk doesn’t always look the way people expect it to 🤷‍♀️ Those braces on her feet are called AFOs (ankle-foot orthoses), snd they’re designed to help with alignment, stability, and muscle support. But they’re also heavy and stiff, which actually makes it harder for Madilynn to lift her legs and take independent steps. Every step in them requires extra strength, balance, and focus ❤️ That’s why her physical therapist is right there beside her, helping with ba
0:14
Madilynn on Instagram: "Learning to walk doesn’t always look the way people expect it to 🤷‍♀️ Those braces on her feet are called AFOs (ankle-foot orthoses), snd they’re designed to help with alignment, stability, and muscle support. But they’re also heavy and stiff, which actually makes it harder for Madilynn to lift her legs and take independent steps. Every step in them requires extra strength, balance, and focus ❤️ That’s why her physical therapist is right there beside her, helping with ba
4.4K views4 months ago
Instagrammightymadilynn
Madilynn on Instagram: "Climbing takes her time, focus, and a lot of determination. And it also takes patience from the world around her. When kids are given the space to move at their own pace, something really special happens: understanding grows, empathy grows, and inclusion becomes natural. Thank you to the parents who teach their children to wait, to notice, and to cheer instead of rush. Those small lessons make spaces like playgrounds safer and kinder for everyone 💛 #sca5 #ataxiaawareness
0:06
Madilynn on Instagram: "Climbing takes her time, focus, and a lot of determination. And it also takes patience from the world around her. When kids are given the space to move at their own pace, something really special happens: understanding grows, empathy grows, and inclusion becomes natural. Thank you to the parents who teach their children to wait, to notice, and to cheer instead of rush. Those small lessons make spaces like playgrounds safer and kinder for everyone 💛 #sca5 #ataxiaawareness
122.2K views3 months ago
Instagrammightymadilynn
Madilynn on Instagram: "Super Suit Bathroom chats, part 1 💕 Today we’re talking about her DMO suit, aka her “super suit.” A DMO suit is a tight, therapeutic garment that gives her extra support, stability, and body awareness. It helps her muscles know what to do, even though it can feel uncomfortable, hot, and frustrating sometimes. And that’s where the real battle comes in. Not just getting the suit on, but balancing what helps her body long-term with how hard it feels in the moment. Advocatin
2:02
Madilynn on Instagram: "Super Suit Bathroom chats, part 1 💕 Today we’re talking about her DMO suit, aka her “super suit.” A DMO suit is a tight, therapeutic garment that gives her extra support, stability, and body awareness. It helps her muscles know what to do, even though it can feel uncomfortable, hot, and frustrating sometimes. And that’s where the real battle comes in. Not just getting the suit on, but balancing what helps her body long-term with how hard it feels in the moment. Advocatin
100.9K views3 months ago
Instagrammightymadilynn
Some new steps for our warrior girl #sca5 #ataxia #disabilitypride #learningtowalk @OverlandFamBam - R. Gaertner
0:26
Some new steps for our warrior girl #sca5 #ataxia #disabilitypride #learningtowalk @OverlandFamBam - R. Gaertner
20.4K views2 months ago
TikTokmightymadilynn
Special follow up dedicated to those who think I should force her to wear her Super Suit 🫶 #sca5 #motherdaughter #bathroomchats #rarediseaseawareness @OverlandFamBam - R. Gaertner
2:11
Special follow up dedicated to those who think I should force her to wear her Super Suit 🫶 #sca5 #motherdaughter #bathroomchats #rarediseaseawareness @OverlandFamBam - R. Gaertner
40.8K views2 months ago
TikTokmightymadilynn
We don’t have it all but we have plenty ❤️ Disability life is so much more beautiful than I could have imagined #sca5 #ataxiaawareness #disabilitypride @OverlandFamBam - R. Gaertner
0:07
We don’t have it all but we have plenty ❤️ Disability life is so much more beautiful than I could have imagined #sca5 #ataxiaawareness #disabilitypride @OverlandFamBam - R. Gaertner
3.9K views2 months ago
TikTokmightymadilynn
Not me tearing up that she doesn’t want to cover her AFOs 🥹 This is disability life 💕 Also did you see her smile when dad came home?! Ugh I’m so lucky #tryonwithme #sca5 #ataxiaawareness #disabilitypride @OverlandFamBam - R. Gaertner
1:28
Not me tearing up that she doesn’t want to cover her AFOs 🥹 This is disability life 💕 Also did you see her smile when dad came home?! Ugh I’m so lucky #tryonwithme #sca5 #ataxiaawareness #disabilitypride @OverlandFamBam - R. Gaertner
9.2K views2 months ago
TikTokmightymadilynn
0:49
Places that Madilynn can take her walker and not need our help are so rare to find but so worth it when we do. We loved visiting this playground in West Jordan, Utah @OverlandFamBam - R. Gaertner #bigsisterlittlebrother #sca5 #inclusionmatters @WestJordanCity
36.6K views2 months ago
TikTokmightymadilynn
0:43
Well, the Queen has spoken and she doesn’t want her braces covered up 🥹❤️ #disabilitypride #flarepants #sca5
27.5K views2 months ago
TikTokmightymadilynn
2:15
Happy Friday friends ❤️ Another day, another #grwm video 💃 @Outback Steakhouse where ya at?! context: Madilynn has been avoiding the playground at school because she needs help to get to it, but this week she’s been asking for help to get there and having so much fun compared to staying on the hard ground. Proud to be her mama every day 💕 #sca5 #disabilitypride #mamaandme #ataxiaawareness
13.6K views2 months ago
TikTokmightymadilynn
0:24
Some independent step practice in the morning 💕 #sca5 #learningtowalk #disabilitypride
162.2K views3 months ago
TikTokmightymadilynn
0:28
Madilynn has a rare genetic disability called Spinocerebellar Ataxia Type 5. We never knew what our life would look like, but damn it’s beautiful. For Rare Disease Week we are sharing a little more about our life. SCA5 affects her balance, coordination, and directly affects the growth of her cerebellum. Basically, it makes her brain speak slower to her body than typical people. But as you can see she’s a kid first. She laughs, loves playgrounds and being around other kids, and wants to be the be
22.2K views2 months ago
TikTokmightymadilynn
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