Arianah is a 10 year old girl who has Cerebral Palsy and PURA Syndrome. PURA syndrome is a rare genetic disorder which affects the nervous system causing moderate to severe developmental delays; intellectual disability, non-verbal behavior and reduced gross and fine motor abilities. Arianah experiences hypotonia (reduced muscle mass), vestibular impairment (reduced balance and proprioceptive abilities), impaired gait, difficulty walking up and down stairs, and intellectual disability. Her mother
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